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Natalie,
I’m sorry to hear about your health problems, it most certainly does sound unfair and miserable https://www.studioveena.com/img/smilies/icon_e_sad.gif
I think not having a diagnosis is the worst part. It’s frustrating to have doctors basically tell you they don’t know what it is and therefore can’t do anything. I have had similarly random and weird conditions before where my arms swelled up for no reason, etc, so I really do feel for you. The only advice I can give you is to actively research your symptoms on the internet and try to find answers for yourself. The health care system can fail you and the more ideas, possibilities, and knowledge you have going into the doctor’s office, the better off you are. Push for answers, ask questions whenever something doesn’t make sense, and refuse to leave without some improvement or course of action. If traditional medicine doesn’t seem to help it may be a good idea to turn to alternative medicine in a while. I myself am a bit weary of it but acupuncture has done marvels for many. My thought are with you.Fleur